Centre de référence
des maladies rares
du pancréas

Request advice

  • Request Advice

    If you would like to obtain a medical advice concerning a rare pancreatic disorder falling within the field of competency of the PaRaDis centre, please download and complete the Multidisciplinary clinical expertise meeting application form, and return it by email to the following address: centre.paradis@aphp.fr

    Please note: Only physicians are authorized to apply to the RCP.

     Download Link “Form Multidisciplany Team Meeting PaRaDis"

    List of pancreatic disorders for which medical advice may be requested:

    • Hereditary pancreatitis associated with PRSS1 mutations
    • Genetic pancreatitis associated with SPINK1 mutations
    • Genetic pancreatitis associated with CTRC mutations
    • Auto immune pancreatitis Type 1 related to IgG4 disease
    • Auto immune pancreatitis Type 2
    • Primary and secondary hypercalcaemia related pancreatitis
    • hypertriglyceridaemia types I to IV related pancreatitis
    • Pancreatitis due to lipoprotein lipase deficiency
    • Idiopathic Chronic pancreatitis
    • Sphincter of Oddi dysfunction
    • Pancreatitis secondary to pancreatic malformations: annular pancreas, ansa pancreatica
    • Serous cystadenoma
    • Mucinous cystadenoma
    • Acinar cell cystadenoma
    • Groove pancreatitis and paraduodenal pancreatitis
    • Solid pseudopapillary neoplasm (SPN) or Frantz’s tumour Shwachman-Diamond syndrome
    • Johanson-Blizzard syndrome
    • Genetic pancreatitis associated with CFTR mutations

    You may be treating a patient with Familial Hyperchylomicronaemia syndrome and wish to commence treatment with Volanesorsen. An RCP opinion may be available in association with NSFA (Nouvelle Société Française d’Athérosclérose - New French Atherosclerosis Society). This RCP panel includes pancreatologists, lipidologists, endocrinologists, cardiologists and geneticists who undertake to validate a treatment indication.

    You can calculate a FCS Score on this link

    To lodge an application, download the form, complete and return it to the following email address: centre.paradis@aphp.fr

    Please attach all available genetic analysis reports to your application.

    Please note: Only physicians are authorized to apply to the RCP.

    Download Link:  “Multidisciplany Team Meeting Volanesorsen form