Centre de référence
des maladies rares
du pancréas


You may be treating a patient with Familial Hyperchylomicronaemia syndrome and wish to commence treatment with Volanesorsen. An RCP opinion may be available in association with NSFA (Nouvelle Société Française d’Athérosclérose - New French Atherosclerosis Society). This RCP panel includes pancreatologists, lipidologists, endocrinologists, cardiologists and geneticists who undertake to validate a treatment indication.

You can calculate a FCS Score on this link

To lodge an application, download the form, complete and return it to the following email address: centre.paradis@aphp.fr

Please attach all available genetic analysis reports to your application.

Please note: Only physicians are authorized to apply to the RCP.

Download Link:  “Multidisciplany Team Meeting Volanesorsen form